APRIL 28, 2023
Ida Sim, MD, PhD
Professor of Medicine
UCSF Director, UCSF UC Berkeley Joint Program in Computational Precision Health Director of Digital Health, Division of General Internal Medicine, UCSF
Co-Director, Informatics and Research Innovation, UCSF’s Clinical and Translational Sciences Institute
About the Presentation: Mobile patient-reported outcomes offer a window into patient’s health and disease states. However, few digital innovations are being integrated into routine frontline care. This talk will discuss our experience in the Mobile Patient-Reported Outcomes for Value and Effectiveness research project collecting patient-reported outcomes for management of multiple chronic conditions in primary care.
Lessons learned include: 1) while many patients assume PRO collection is solely for clinician use, a paradigm shift is needed to support patient agency in data-driven self-management, and 2) scaling of digital approaches to integrate patient-generated data into clinical care requires coordinated enterprise-wide technical and governance infrastructure.
About the Presenter: Ida Sim, MD, PhD is Professor of Medicine and Computational Precision Health, UCSF Director of the UCSF UC Berkeley Joint Program in Computational Precision Health, UCSF’s first Chief Research Informatics Officer, and a practicing primary care physician. Her research focuses on the technology and policies for large-scale data sharing of health data. She co-founded Open mHealth, a nonprofit organization that defines the IEEE global open standard for patient-generated health data interoperability. Her current research develops new methods for integrating smartphone and sensor data for management of multiple chronic conditions in primary care.
Dr. Sim is a member of the National Academy of Medicine and the American Society for Clinical Investigation, is a recipient of the United States Presidential Early Career Award for Scientists and Engineers (PECASE), and a Fellow of the American College of Medical Informatics.