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Ethics and Social Justice in Research Involving Vulnerable Populations

May 15, 2015

Celia B. Fisher, PhD
Marie Ward Doty University Endowed Chair and Professor of Psychology
Director, Center for Ethics Education and HIV and Drug Abuse Prevention Research Ethics Institute, Fordham University

About the Presentation: The presentation will identify challenges and opportunities for the responsible conduct of research with racial/ethnic, sexual minority, and economically disenfranchised children and adults. Topics will include defining minimal risk, waiving guardian permission, developing population sensitive confidentiality and disclosure polices for high risk social behavioral research and studies involving genetic testing, the importance of community collaboration and research on research ethics will be discussed.

About the Presenter: Celia B. Fisher, Ph.D., the Marie Ward Doty Endowed University Chair and Professor of Psychology, is founding Director of the Fordham University Center for Ethics Education and the NIDA funded HIV and Drug Abuse Prevention Research Ethics Training Institute. She chaired the Environmental Protection Agency’s Human Studies Review Board and the American Psychological Association’s Ethics Code Task Force and was a member of the Secretary’s Advisory Committee on Human Research Protections (SACHRP) the National Academies’ Revisions to the Common Rule for the Protection of Human Subjects in Research in the Behavioral and Social Sciences, the National Institute of Mental Health Data Safety and Monitoring Board, and the Institute of Medicine’s Committee on Clinical Research Involving Children. She was awarded the Lifetime Achievement Award for Excellence in Human Research Protection in 2010 and named a 2012 Fellow of the American Association for the Advancementof Science. She is the author of Decoding the Ethics Code: A Practical Guide for Psychologists (3rd edition, 2013); co-editor of eight books, including The Handbook of Ethical Research with Ethnocultural Populations and Communities (2006, Sage Publications) and Research with High-Risk Populations: Balancing Science, Ethics, and Law (2009, APA Publications); and over 150 theoretical and empirical publications. Her federally funded research focuses on understanding participant perspectives on ethics policies and practices.