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Segmenting Sensitive Data for Care: SHARES (Substance use HeAlth Record Sharing)

MARCH 8, 2024

M. Adela Grando, PhD, FAMIA, FACMI
Associate Professor of Biomedical Informatics, Arizona State University
Adjunct Assistant Professor, Mayo Clinic
Informatics Lead, Honor Health Clinical Informatics Fellowship

About the Presentation: Optimal care is delivered when patients and providers can communicate and share information. Critical health data, especially sensitive data like substance use disorder information, is often sequestered in ways that fall short of patient data privacy choices and provider needs. This seminar explores the innovative NIDA-funded SHARES (Substance use HeAlth REcord Sharing) Project and its predecessor, My Data Choices. SHARES is the blueprint for a new, standards-based, EHR-agnostic data segmentation technology that will improve data sharing, interoperability, service delivery and ultimately health outcomes.

About the Presenter: Dr. Adela Grando is an Associate Professor of biomedical informatics at Arizona State University, Adjunct Assistant Professor at Mayo Clinic and Informatics Lead for the Honor Health Clinical Informatics Fellowship. She has trained in the US, Europe, and Latin America, including the University of California, San Diego, Oxford University, and the University of Edinburgh. Her areas of expertise are healthcare information technology (HIT), patient-centered technology and mobile health. She applies computer science to medicine and builds technologies to empower patients’ healthcare decisions and choices. Her work focuses on those often excluded from research including Latinx individuals and patients with behavioral health conditions.